How to use Twitter to find information on Stargardt’s Disease

23 Nov


I have previously blogged about how to use Facebook and Google Alerts for finding Stargardt’s Disease information, today I would like to share with you how to use Twitter to also keep up to date on new information and to connect with others with interest in Stargardt’s.

 For those of you who are unaware; Twitter is an online social networking tool that allows users to post quick updates to the internet (known as Tweets) which can then be read by anyone who either follows your Twitter Account, or is searching for any particular words you include in your Tweet, e.g. ‘Stargardts’.  There are almost half a billion Twitter users around the world, and on average there are 300 million Tweets per day – Twitter is often referred to as the Text Message/SMS of the Internet.

Setting up a Twitter Account and Logging In.

The first thing you will need to do if you do not already have a Twitter account will be to visit and join up:

Once you have signed up, then login 🙂

Searching for Stargardt’s information

The best way to search for info in Twitter is to use what is called a ‘Hash Tag’.  Essentially, a Hash Tag is a quick way of highlighting keywords in your Tweets as you post them, so that others can search for key words and your Hash Tag will be picked up and displayed to the searcher.  A Hash Tag is created by putting the ‘#’ symbol before any key word, for example:

  • The Hash Tag for ‘Stargardt’ would be ‘#Stargardt’

So by searching for ‘#Stargardt’ in the search bar will bring up all the relevent Tweets that contain the word Stargardt, please see below example:

In the above you can see that I have searched for ‘#Stargardt’ and it has provided some results of Tweets containing that Hash Tag.  You will also see there is an option to ‘Save This Search’ too.

How to Reply to people on Twitter

Once you have searched and you have found a Tweet you want to reply too, hover over the Tweet and it will provide you with the option to ‘Reply’, as per below:

How to connect to the new websites and information being shared in Tweets

You will also see in the picture above that I have typed a link in my Tweet, this would take you to this Stargardt’s Blog, however other people may be posting links to their blogs or to reports about Stargardts or videos about it on YouTube, so be careful to read the Tweet and if you like what you read, then click the link to learn more 🙂

How to Share what you have found

If you have found a Tweet containing information you would like to share, you can Re-Tweet the post, which will then republish it from your account and also name the person your Re-tweeted it from.  In the same light, someone can also Re-Tweet anything you post and you will be name checked in their Tweet.  You can Re-Tweet and share by hovering over the Tweet and selecting the ‘Retweet’ button like you can see in the picture below:

Who to Follow on Twitter.

You will notice that Twitter also suggests people to follow who talk about Stargardt’s, although be carefull who you follow – Twitter doesn’t get it right every time.  By following someone, you will see all of their Tweets on your Twitter homepage, regardless of whether is mentions #Stargardt or not.

I can be followed by my user name @GarethKitson –  Click on my name there and it will take you to my profile, you can follow my tweets and also talk to me on Twitter too.

Next Steps.

Get on Twitter.  Sign up and get searching for Hash Tags and get Tweeting and Re-Tweeting Stargardt’s information… Perhaps one of your first Tweets could be mentioning this blog (by copying the URL Web-Address and putting it in your Tweet) and telling people that it is about #Stargardt’s 😉

And, feel free to follow and/or mention me – @GarethKitson – and I will follow you back 🙂

I hope this has helped, and please also share this Blog on your Facebook pages too, as it will help more people learn about it and Twitter too.

I will write another blog soon about how to use other tools to search for Stargardt’s info.

Please let me know what you think in the Comments section below the blog 🙂




4 Responses to “How to use Twitter to find information on Stargardt’s Disease”

  1. Fight Blindness November 23, 2011 at 4:24 pm #

    This is an excellent intro to Twitter and you are exactly right, it is a great tool for finding out really defined information on almost any topic of interest, including Stargardt disease. We would recommend anyone with a retinal disease to do the same with the keywords surrounding their specific disease. Another great way to organize all this information into one spot on Twitter is to use lists. Group all the disease related users into one list and see them all in one spot.

    Great post and thanks for sharing!

  2. Degenerative joint Disease December 9, 2011 at 3:08 am #

    Woah this weblog is great i really like reading your articles. Stay up the great work! You realize, a lot of people are searching around for this information, you can help them greatly.

    • Gareth Kitson July 9, 2012 at 10:06 pm #

      Wow. Sorry for the late reply but we’re glad we have been of help. Kayley an I will be blogging a lot more from now on so please do come back and visit us often 🙂


  1. VOTE FOR RYAN: 5th Grader with Stargardt’s up for an Award! « Living with and Supporting Stargardt's disease - November 25, 2011

    […] I saw a post on Twitter (using my hashtag search for #Stargardt’s as mentioned in a previous blog plost here) and found a piece about a very inspiring you chap called Ryan […]

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