Archive | August, 2012

Summer time!

29 Aug

I turned 24 the other day. Tragedy! LOL – I think I’m having a quarter of the life crisis as I got my nose pierced for some reason!

It’s been a busy  time.  Me and my mum took my painting to London ready for the exhibition early September in london! Wahhoooooo!  (I wrote a little about this in a blog here.)

I’ve also been gigging with my Band the Groove Hustlers, done some more painting, and, visited one of my fave places in the Lake District last weekend and we took our dog Yoko dog and she lovvvved it! We climbed loads of hills and had good food and drink!

The ironing is still going strong too!

So….

Eyes:

I have noticed over the last week or so, some very bright white flashes.. Very occasionally..

The weird thing is, on different social networking groups I have seen other peoples descriptions of what they see, and I said a few weeks ago I didn’t get those flashes… but now I do….  It’s almost like a ball of hovering white light.

The Paralympics start later and I’m very excited about this as I’m sure I have seen somewhere there is someone running with Stargardts!!

A few people with Stargardt’s have contacted me through this blog.  It’s been great to hear off others with the same condition so thanks for getting intouch 🙂
Peace

Xxx

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Piks from last nights gigs

11 Aug

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Last nights groove hustlers band gig!

Fill my eyes with colour

3 Aug

I love painting in an abstract colourful way as I find it really stimulating on my wee pupils!

I always paint on a big scale, which almost has a fairy tale forest theme! Like you could get lost in the flowers.

I’ve taken some pictures with me in it so you can see how bright and big it is!

You can see more of my painting on my Facebook page – www.Facebook.com/KayleyRoseArtist

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Paint Witt he hands why not! Bigger surface area Loli!

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Reflection of what I see as a Stargardt’s patient!

3 Aug

Just finishing one of my abstracts, I decided to do a crazy abstract self-portrait of how I see.

Here goes:

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So the top bit is some random curly hair, it goes to the purple blob in the middle and you should see some lips at the bottom

I wanted to paint on my glasses etc properly.  I was thinking of what I see when I sit next to people in a car.  Depending on where I sit, most of their face is deleted, I can make out like a distorted lip or eye etc.. I wrote more about how I see faces when close up to the person in this blog post here.

So to put the detail down

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I see a silver blob, as I would describe my central vision as colourless …

I then covered the majority of the face over with silver, and then just got the end of the painting and started mushing it all together (go too carried away to take a picture here)

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I would say in a way this reflects what I see. Minus the black bits but I wanted to show the audience how confusing it is what we see.

I would say the very outer area. More of the round circular brush strokes and the white bits are very correct as it just kinda looks right.

The middle sections with darker worker area emphasis the very intense blind areas in my vision in the middle.  This isn’t the size of my blind spot as we speak, it is towards the area where most intense confusion is caused (I was just enjoying myself!)

I kinda like how the outer bit appears wobbly as this is very much like what I see.

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Check up day.

3 Aug

So it was the dreaded check up day yesterday…

I don’t like my check ups as I think that somehow it reminds me of the reality that I’m facing, especially in some of the tests that I’m really bad at i.e. reading ‘The Alphabetical Chart’.  When looking at the chart, I couldn’t see any of the letters in any eye, where as last time I could see some black dots where the letters should be.  It really scared me as I could defo see a real change from my last check up just six months ago.

I wouldn’t mind if they could give me some tablets to make me better, but I just get told things like  “Avoid vitamin A“, and “Wear sunglasses” etc…  I normally just get on with it and have such a positive view, but yesterday was one of those “why me?, I’m only 23 years old” days,  “I shouldn’t be sat here in Tears”.

Anyway…
The lady says I’ve got 6/60 vision, but I then felt slightly insulted when she said I had “good vision” compared to older people with this condition! I thought I’ve got vision, but I’m registered blind and can’t even recognise people etc but she says I have good vision?-  Fummmmin!

Does anyone else get upset on their check up days??

Frustration.
It annoyed me aswell that the hospital isn’t very accomodating for the type of people and patients they should be catering for.  The corridor and walkway in the waiting room was no more than a metre wide, and there were chairs facing each other leaving only a tiny bit of room for people with cains trying to get through.  There was just no room. I thought “Oh My Gosh! this is so-called an eye hospital!” …Grrr.

Then, to top it all off, when it came to booking my appointment for next year, the chap on the desk was like “Ooh fill out this form”, it was in Small Print! I was like “Orr I can’t read this!!!” So I just wrote in pencil ‘too small to read’ haha!

Onwards and Upwards
Anyway that was yesterday day, this is today, so I treated myself to two rashes of bacon and some eggs haha.  I’ve also started training with my friends to do a 12 mile run “hell runner“.  I started training this week, my first run was 5 miles and two days ago I did 10 miles (very slow jog) but I couldn’t even run around a field two weeks ago! It was really fun though you know, I felt like I was skiing on the way back running down hill ha! As free as a bird…

Hope all is well!
Ooh yeah, I sold my first “real life” painting the other day.. I was so happy!  It was of Barbara the Chicken, and how nice is this –  the lady who bought it brought flowers and eggs from the chicken!!  I was well chuffed

Xxxx Lots

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