It’s good to talk !

29 Oct

Hey there!
Sorry I’ve been distant recently!

(I had forgotten my password and couldn’t get into wordpress!)

I’ll write a blog updating you on what’s been going on in my little life… I am due to be a Mrs.. Me and my partner got engaged on August 4th! :D.
Exciting times-I better egg my apron on .haha…

But for now.

It is amazing who you can meet over the internet..

One of the reasons I made this blog was to hopefully have contact with people of a similair age to myself with a similair problem to share experiences and get inspiration from others in this situation.

And guess what…. I recieved an email off a girl named Becca!

Becca emailed me a few months ago.. and she has been a breathe of fresh air…
It has been a great comfort sharing experiences and as it turns out we have the opposite problem…
Where I have no centeral vision, Becca has no perifferal vision…
So together we would have perfect eyesight haha….

It turns out we started with visual problems at a similair age and have had similair experiences with vision loss and the way we are dealing with things are similair too…. Which is uncanny!
(Sorry for using the word similair a lot there!-couldn’t think of another word!)

It’s been great to meet Becca..someone who fully understands the problems we face day to day which to the morn may seem like nothing!

Beccas is 24 and studying her Masters degree in early childhood at Chester uni..Becca has a rare inherited condition Retinitus Pigmentosa…

read Beccas blog and share with others:

We wNt to start a group for people our age as we can’t seem to find much out there’ll.
So if you’re in a similair situation email us we would love to chat!
This sounds like a dating advert or something but it’s been really helpful talking to one another so feel free.

Kay πŸ™‚


3 Responses to “It’s good to talk !”

  1. October 29, 2013 at 6:43 pm #

    Hi there, any chance u can send this in a larger font. Thx On Tue, 29 Oct 2013 18:22:40 +0000 Living with and Supporting Stargardt’s

    • kayleyrose October 29, 2013 at 11:59 pm #

      Hey, I’m on an iPad so there’s no enlargement settings.. I can copy and paste and put into an email if you want to add your email address or if you highlight text and put it into a word document and enlarge text that may do it! Whatever’s easiest for you. Just let me know!

  2. kayleyrose October 30, 2013 at 12:00 am #

    Cheers!!! πŸ˜€

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