Archive | March, 2016

Pretty Mermaid!

31 Mar

Been working on this Mermaid today!
It started as a love heart and as I walked back into the room it looked like a pair of boobs. ..I thought oo that’d be a good mermaid!
I love bold, vibrant colours … the brighter the better for me.  I don’t know if this has something to do with Stargardt’s.

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ething to do with #stargardts maybe!
Anywyay!
Hope you like!

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Amazing friend

29 Mar

https://www.justgiving.com/Jessica-Gillis

My friend Jess is climbing the THREE PEAKS to raise money for the Macular Society.
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Please share with family and friends and let’s raise some amazing £££ for a brilliant cause

Three years ago I lost three stone unable to eat with such worry of what the future held for me.
I couldn’t find the words to talk to my family about what was happening to me nor friends as I felt no one understood….. being no cure for my eye Condition I needed to deal with this head on.

Under my smiles I felt broken.

My outlook from being diagnosed with Stargardt’s age 17 was positive ..”i can I will…” “every cloud” etc..

I was in Denile and when I faced up and came to realisation my eye sight was deteriorating and I needed help accepting a d moving forward.
I remember walking my dog and crying down the street I lived In..saddened i was 20 odd wearing Sunglasses on a miserable day…missing the simple things of saying hello to a familiar face..neighbours and just seeing a friendly face…
I woukd recognise people By tbey’re dogs… if people stopped to let the dogs have a hello I’d think o yeah that’s the lady with the white dog etc. .. . It’s crazy really.
I had moved away from my parents home so i only knew a handful of people in the area….
I felt really alone at this time..almost in my own world.
I googled helplines and came across the Macular Society
I dialled the number…At first I couldn’t talk I was so upset..i put the phone down…
The lady rang me back …
We discussed what was hapoening and I had 8 weeks of one hour councillor sessions over the phone.
This honestley transformed my life
The lady set me goals..we talked about all my concerns for the future
She explained it was almost like grieving my old life…..
This really helped me to accept my condition and to work on what I had from that day forward
She told me to see things from the prospective if it was the other way round and smeone told me they were going blind how would react.
Of course I would want to help. ..I wouldn’t judge…I wouldn’t think they were less of a person. ..
I would want to help in any way that was nesesary.

I can’t thank the Macular society for this.
This really helped me turn a massive corner in my life…I am fine with telling people about my visual impared enter now and have much more confidence in using equipment to her by.

I can’t thank Jess enough for raiding awareness of this cause…it means so much to me, it neans so much to you if that makes sense.
I find it crazy and we have talked about this… I’ve known jess 26 years of my nearly 28 years .. I was diagnosed with this Condition 10 years ago.
I can’t imagine being the friend that Jess is to me, if the shoe was on the other foot. It put in a lump in my throat to think of a friends eye sight deteriorating and being so strong for them…
I can’t really distinguish mo ney anymore…she will pick out the coins for me ….
I point blank can’t read a menu at a restraint…I have a magnifyer on my phone but jess will always just say soo what do you fancy….there’s this this n this. .
She will pick me up .. drop me off …listen to me…. have nights in…have nights
out….motivate me… send me links on the I tenet to make my life easier.
She helped me with the studio decorating… she’s advised me…. she’s wiped my tears, made me laugh and laughed at my jokes.
I just want you to know I appreciate this so much and thankyou for making my life so much easier when im in your presence Xxxxx
…if your reading this Thank your for your friendship o
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When we were little!
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As we grow!
And finally Jess training!!!!!! #dedication
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Don’t be afraid to be blind! Be blind, bold, persue your dreams and why not be proud

29 Mar

Hello!
Hope all is well in the world!
A little update from last time!
I really do believe with hard work, determination and a little self belief you can achieve whatever you want to do in life… dispute our situation… if you out your kind to it you will succeed.
The past few years have been up and down and don’t get me wrong I have felt some rejection but you know what I am so glad now
If this rejection didn’t happen to me I wouldn’t be so motivated to make things work for myself… I fell now I am where I am supposed to be whether I had stargarts or not…I fell I’ve found my fortay!
I love art and so believe it’s my therapy..I get lost in the colours and can’t quite believe I’m selling my work.i feel I have a purpose and have a space that is my own surrounded by metalic’s, shimmer the brightest colours and the whitest canvas’ to go and attack!!!
No matter what you want to do career wise please don’t let this disease beat you.
Yes we take longer to do things, it’s a struggle but the sense of achievement makes the hard work worth it.
The extra challenges we face I see now as and game that I have to complete!
There is and ways a way rou d things.
Forget stigmas and all the rest of it. We are equally if not more valuable to the world…. we have understanding, empathy if others … believe in yourself and push yourself
I’m only saying this as all of a sudden I find my self in a place where about a month ago I took the plunge and began renting my own art stdio space!
When I first got jt I hated the wall paper ha it qas wreck the feng shui…..I painted white emulsion over r the wallpaper ..it began peeling off …it stripped it..there was mould I cleaned and re pai Ted. ..it’s now fresh space!
I believe so much in art therapy… Honestly you could get a little art set of £10…have a go…it’s gare tee you will be sent ro a other world of distraction ha j sound mad but try it and see…. excuse the pun …
If you do I would love to see any pics…I’m really interested in how other v.i folk see …paint what you see…do anything…I’m excited!
I feel very proud! Ive been using my iPad to zoom in on animals and tried some realistic animal portraits!
According to the photos when I zoom back in onto painting they’re working g out well.
I don’t know how .. just paint what I see…I have to zoom into each part of th3 animal and scale it back down onto the page!
It proves difficult from time to time and can be disastrous but hey .God loves a tryer.Ha… And did i mention time consuming ha. I love it though…
I did not know I was a slight perfectionist but i can work on my

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