Meet the Bloggers

Hi,

We are Kayley Johnson and Gareth Kitson.

Kayley is an artist and professional singer and in 2009 got down to the last 12 girls in the X-Factor.

Six years ago at the age of 17 I was diagnosed with Stargardts.

I have made this blog to hopefully provide some useful info about Stargardts and to help others connect with this condition!

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3 Responses to “Meet the Bloggers”

  1. Benjamin Simanski January 19, 2013 at 11:42 pm #

    I am writing as I too suffer from stargardt’s disease. I was recently diagnosed at the age of 29. Currently, I am considered legally blind, which is less than ideal. However, recently I was invited to run the Boston Marathon for Team Mass Eye and Ear. The funds I raise shall go directly to Dr. Elliot Berson’s research. Dr. Berson’s dedicated to helping those of us with Stargardt’s. Below, I attached a link to my fundraiser. I understand asking for a donation is a lot. If you can help, please do and/or please pass it on. Also, I left my email if you have any questions. Thank you for your time.

    http://www.crowdrise.com/TeamEyeAndEar/fundraiser/benjaminsimanski

    Ben

    • tudor April 4, 2013 at 7:58 pm #

      i am stargardt patient as ben i am legally blind. but for me is not a problem since for few things in life that i can not do i am the most happy stargardt patient that you will encounter.. i wull join kayley and gareth in there objective of helping others like us with a NGO that i just created in romania called “Stargardt romania”, a web page that i will create and a facebook page that i just started at page at https://www.facebook.com/StargardtRomania

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