Tag Archives: Stargardts

Give Yoga a go!!!

3 Jun

GOOD DAY FOLKS!

Over the last few years my eye have deteriorated progressively. I’ve struggled to find a sporting activity other than skiing that i can take part in that doesn’t leave me burning with embarrassment as the teacher tries to correct me until i have to announce to the class i have a visual impairment etc.

Yoga is for all abilities, it is generally practiced in a dark, lightly scented studio and is literally audio described by the teacher all thr way through the session.

Yoga is a group of physical, mental and spiritual disciplines.

You are told to close your eyes during the practice. So everyone in the class is on the same page!(YESS)

It is a wonderful way to tone, stretch, and relax your body and mind.

There are many poses during the class we perform.

The more you go to yoga the more flexible you become and the more challenging and advanced the yoga becomes.

It is a fantastic discipline to have. It enables focus, great agility, balance, determination and flexibility which can all be taken outside of the yoga class into real life

Yoga has become a big part of my life and i have found it is very relaxing especially learning to meditate.

Meditation is a practice i have learned at yoga.

Relaxing music is played and you are told to forget about all the stress, the struggle:there is nowhere to go and nothing to do.

You try and think of nothing and just let your mind and body be.

Meditation is for me time to just be..relax and release stress

Meditation increases peace and wellbeing and honestly leaves you feeling like you’ve had the most lovely spa day and massage.

I often feel like I’m floating when i leave the class and just feel so good from the core.

I have a playlist on spottify i often put on which somehow sends me to sleep straight away… it’s like i have been classically conditioned to sleep at the sounds of this music.

Ahhh

Yoga is amazing for the mind, body and soul and is so inclusive for all abilities… give it a go!

(This photo is my bro trying to copy hahah….. i wouldn’t advise trying on a picnic bench ūüėĀ.. have a great day and thanks for reading!)

Namaste ūüĆĽūüĆ∑ūü¶č

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New sunnies!

12 Apr

Aw wow my Dad bought me a pair of Oakley Polaroid Sun glasses today.
We’re in Austria Skiing and the first two day’s I was very hesitant on the slopes.
Bless my Dad he’s bought a really bright orange outfit so I can follow him down…. he says he feels a bit conscious as it’s very “out there” but it’s great for me!
I was really struggling with my eyes so we decided to try some new glasses.
They were expensive but I swear to god they make everything so much sharper.
We’ve found an area in Austria thats super quiet for skiing so we always take our time when other skiers are knocking about and then go for it when it’s clear!I love it!!
Have a look at my Instagram kayleyrose88 for a few clips.!
Here’s a few pics of the holiday and my blue Sun glasses!!!
Hahah defo getting in the swing of the

visually impared changes we have to make!
Have a top week people ‚ô°

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I love skiing!!!!

13 Nov

Skiing makes me feel free as a bird, in control of my speed and I can travel to wherever i want ( within reason!!)…

From being a kid my dad shared his passion with the rest of the Johnson’s and created a couple of speed demons on the slopes!!!

I started skiing when I was about 8 and we have been lucky enough as a family to travel “all over the shop” (Father quote) and spend loads of brill holidays together.. our little ‘Brian the Snail’ (Mum) comes too and tries her best, and deep down, she likes it ūüėõ haha.

In the last couple of years my Dad became a qualified ski instructor and has traveled to Italy teaching British school kids!  A life time ambition complete! Nice one daddd Xxx

We’re going to Austria again soon! It’s Gaz’s 4th ski holiday n he’s really good too!

Excited!

Here’s a couple of videos of us skiing. ¬†Hope you like..

(I am wearing lime green pants with a purple coat)

Here is a video of Gaz of his second time skiing.  He is wearing red trousers and a yellowy green coat.

I’m considering wearing bells on the slope this year ¬†to make people move out-of-the-way!! ¬†Like my own beeper on a car haha..

I always wait for a clear slope so no one will get hurt!! And follow or get directions off family members on which direction to head. ¬†We usually ski the mountain in sections so it’s easy for my eyes!

I think because I could ski before Stargardts it’s made it easy as I literally just take the rough with the smooth on the slopes and seem to be able to absorb any bumps in the terrain..

Simple!
….always wear a helmet!!

aw wow! thankyou

26 Mar

Im not sure if this will work as im not so computer savvy but lets see!!

http://essceejulies.blogspot.co.uk/2013/03/Living-with-Stargardts-Disease-low-vision-singer-artist-Kayley-Rose-X-factor-music-The-Beatles-macular-degeneration.html

Kind words https://twitter.com/eSsCeeJulies hope you are doing well xxx

Christine’s ongoing painting!!

26 Mar

Christine’s on going piece that I am painting!

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Never wearing my heart on my sleeve – only on here.

26 Mar

ola! Bonjour! hello!!
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It’s been so long I haven’t blogged I do apologise if you were a regular viewer probably my Mum, Auntie¬†and Sue and of course Gaz :D….

I haven’t been up to¬†much really I don’t suppose! Christmas came and went.¬† Me and Gaz made some cool Jamie Oliver ice sculptures, and¬†we went to Austria at the end of Jan skiing… I’ll have to put a video up of us skiing… It does make me laugh I’m a bit of a nutcase on the old wooden planks visually impaired or not.

We had an app on Gaz’s¬†iPhone to monitor our speed, and I am probably wrong in saying this but I’m sure I hit around 52 mph….(we went to a really quiet resort to cater for my special needs Loli!).¬† I was considering wearing a high vis jacket with a spray paint eye on it, but maybe next year.¬† It was great, I wasn’t so good if the slopes got busy –¬†I would just stop and wait for people to go and semi hope for the best……joking.. I was fine… My dad or gaz would normally lead the way and I would go down the slopes in parts…..

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Also, Happy Birthday to my lovely “man in my life” haha, 30 years¬†old¬† on March 10th.¬† I¬†love you loud and proud! Everyone needs a¬†Gaz¬†in their lives<3 Xxx

The last few weeks I’ve been job hunting.. I just want a normal working life, going to the work place and coming home etccccc… Making my singing and¬†the Band¬†more of a hobby than a job.

I do feel a bit like I have some talents… I’d love to do interior design and be the next Linda Barker, but I feel the opportunities aren’t there for me as employers may not understand when they here the word blind….

I made a list of part time things I could do:

  • Cleaner
  • Sales assistant
  • Bla
  • Bla¬†bla

I have found it hard finding links and opportunities to suit my needs…

Being positve and proactive I am though starting a florist course in a couple of weeks.¬† I hope I love it, and hope it makes my hands shake (something I do when I’m excited) and hope to start an apprenticeship and then get into work that way.

I really think there should be some kind of service, I know there are things like advice, but there are no job ideas or anything and when searching the internet on massive font it’s not easy…..Arghhh!

I know there are gadgets to help when you get into a work place, but anything computer based is a nightmare for me!. I’ve never been interested in computing before this disease started, so I need something arty fatty to get by.

I do hope these blogs are not too long but¬†I¬†do find it therapeutic putting what in thinking down on this wee page…

There have been tears recently but once there out, there out….¬†¬†It just gets to the point where I try to block the problem as much as possible, and then when something happens it just tips me over the edge so to speak!!..¬† I ordered a taxi to take me home from a primary school¬†I¬†do some singing work at and ended being stranded¬†at in the middle of nowhere!¬† After the taxi at first being over half an hour late while¬†I was stood outside in the cold,¬†I¬†rang the company and they said, like ususal, “it’ll just be a couple more minutes”.¬† After two more hours in the freezing cold just wearing a thin coat and a dress (with tights Loli), the school had locked up and¬†I was outside, alone, in the dark.¬† ¬†I thought whyyyyyyyyyyyy?!¬† Why¬†do I need to stand here waiting for a generally horrible,smelly taxi, in the middle of nowhere, when everyone else just get in their car with the heaters and drive away. Argggh!¬† Annoying that my dad actually taught me to drive, and I am more than competent, just my eyes let me down…. If only things could be different…

I have also been experiencing lots of dizziness lately, especially when I’m in a car.¬† I think as the blind spots have gone bigger, I find myself in a trance, and the motion of speed and the colours flashing by just makes me wanna puke…. Have a nice day on that note! ūüôā

Oh yeah I joined the gym too!..¬† It’s been great focusing energy on something else.¬† I have been doing¬†Zumba,¬†I stand right at the front, just behind the instructor so¬†I¬†can see the best¬†I¬†can… I’m sure the instructor thinks I’m her stalker Loli!
Enjoy!Xx

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I could never see my eye liners in my makeup box, so I’ve painted blue nail varnish on them so they stand out rather than feeling around for them there just there now! #goodthinkingbatman

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Show time!

13 Nov

Hi y’all!
I’m quite excited about Friday, I have quite a big show coming up.. It’s related to the Olympics so I am learning the Shirley Bassey song GOLDfingerr.. Convenient¬†aye? ¬†woop ha

I’m¬†gonna¬†try and¬†post a vid of my practise at my mums house later.

I just purchased my first Xmas presents today!!!! Also for my mum ahhhh nicey nicey woop.

Got a new phone too.¬† My other one landed in a cup of tea a few days ago, so I went for the Samsung Galaxy Note… I hadn’t used my old mobile for so long as the text was far too small¬† and I¬†could only pick out certain words from it, such as¬†‘Hi’¬†etc…¬†So I have been having¬†my friends to message¬†me on my iPad.. But wahho feel like a new women with this phone ha! all technical etc…. The text is pretty large .. It could be larger but my friend is looking for an approach enlarge it¬†even more.

The only difficulty is the home page. The clock is big, but icons such as settings, camera, gallery bla bla are tiny! I know where the basics are, but I may need to whack my magnifier out to have a good look and play around.

Anyway I’ll do a blog on my phone once I’ve finished learning this song!

Kayley rose

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